Join my club.
Lucille and me, Mother’s Day 2010.
By this time, Mom was well into the mid-stages of Alzheimer’s and her cognitive ability to stay within certain limits or boundaries, both literally and figuratively, was fading. She had lived in her own separate apartment in the rear section of the first floor of our house for about 7 years and, up to this point, we always had an “understanding” that the upstairs part of our space was sacred for my husband and me. I don’t remember the details but for some reason on this particular day, Mom chose to break through the invisible barrier and I responded in a way that still fills me with shame. We were arguing over something, she from the bottom of the steps and me upstairs in the laundry room. At some point, she stubbornly and defiantly began ascending the stairs despite my warnings to stay put. She was pushing every internal button of my being and all my alarms were shrieking, “Danger, Will Robinson…….” When we met in the hallway my hands went to her shoulders and for a brief second in the height of my anger I wanted to shake her. Hard. I wanted her to be physically punished. Not just for that moment, but for all the other days, weeks, months and years that she had “interrupted” my life. By the grace of God I was able to restrain myself, and for that I am grateful, though there were many other moments of frustration in the years to follow.
Three years ago, we bade a final farewell to this shared journey through Alzheimer’s, often referred to as “the long goodbye.” My precious mom was finally set free from the chains of her own suffering and my caregiver label was now in the rear view mirror. All I wanted now was some time to enjoy my life without having to think about death and dying for awhile. But then, one by one, various girlfriends had parents who were getting sick and, yeah, I was the one who came to mind when they needed help. Occasionally I had some answers or advice but they knew I couldn’t fix their situation. But what I could provide was a judgement free zone and the understanding ear of someone who had once traveled to that place…and lived to tell about it.
In hindsight, I am able to see those years with Lucille less hysterically and with more clarity. What if I had understood them as less of an “interruption” and more of a gift? Perhaps that’s too much to expect in the heat of the moment, but as the notion of “everything belongs” slowly seeps into my soul, some of the bitterness subsides and the smallest seeds of gratitude begin the process of germination.
My desire is that this will become a regular stopping place, a virtual respite of sorts, for good daughters everywhere who are writing the stories of their own lives as caregiver, whether gratefully or grudgingly, with joy or jaws locked in determined commitment. Every story is unique but the common cord that binds us all together is the deepest desire we possess to honor our parent, perhaps even when they have not parented us honorably. We long for someone else who understands the absurdity of parenting a parent. Someone to say, “I get it and I’m linking arms with you in your struggles and in your joys.”
Come back often and bring a friend.
Courage + Beauty,
Kathi







